摘要
【Abstract】【Background】Globally, 47.5 million people were living with dementia in 2015. This figure is expected to reach 75.6 million in 2030, and over 135 million by 2050, with Sub‐Saharan Africa being among the regions expected to have the greatest future increase in dementia incidence and prevalence due to the aging population. With this growing number across the world, identifying a source of regular caregiving for people with dementia (PWD) has become a routine practice. While high income countries have formal support systems for people living with dementia and their caregivers, including adult day care and residential programs, in lower‐income countries such as Zambia, informal caregivers (often family members) assume this responsibility and serve as an interface between PWD and health services. The challenges and needs of community‐based PWD and their caregivers in Zambia have not previously been identified and understood; hence limiting the medical team’s ability to address those needs and increases the risk of negative outcomes for PWD.【Method】This was a cross sectional study (n = 33) community based people living with dementia each with a caregiver. The participants underwent a one‐time in‐depth in‐home assessment enabling collection of socio‐demographic characteristics, clinical characteristics, measurement of performance in activities of daily living and impact of supporting someone with dementia. Assessment of care needs was a based on the John Hopkins Dementia Care Needs Assessment tool. Regression analyses were conducted to identify demographic, clinical, functional and quality of life correlates of unmet needs as well as identify the independent predictors of unmet needs among PWD and their informal caregivers【Result】The mean proportion of unmet needs for patients with dementia was 57% while that of caregivers was 62%. Significantly higher unmet needs were associated with having attained a tertiary education and having an unknown type of dementia.【Conclusion】The study identified that patients with dementia and their informal caregivers had a high prevalence of unmet care needs in multiple domains. It also demonstrated that in this particular cohort, having a tertiary education and an unknown type of dementia was significantly associated with a higher proportion of unmet needs.
摘要译文
【摘要】【背景】全球范围内，2015年有4,750万人患有痴呆症。预计该数字在2030年将达到7560万，到2050年将超过1.35亿，而撒哈拉亚下非洲则预计将在痴呆症发病率和由于老龄化的痴呆症发病率和患病率上增加。随着世界上越来越多的数量，确定痴呆症患者（PWD）定期照顾的来源已成为一种常规的做法。尽管高收入国家为痴呆症患者及其护理人员（包括成人日托和住宅计划）提供正式的支持系统，但在赞比亚等低收入国家，非正式护理人员（通常是家庭成员）承担这一责任，并充当PWD和健康服务之间的界面。以前尚未确定和理解，基于社区的PWD及其在赞比亚的照顾者的挑战和需求；因此，限制了医疗团队满足这些需求的能力，并增加了PWD的负面结果的风险。参与者进行了一次深入的内部评估，从而收集了社会人口统计学特征，临床特征，日常生活活动中表现的测量以及支持痴呆症患者的影响。评估护理需求是基于约翰·霍普金斯痴呆症护理需求评估工具的基础。进行了回归分析，以识别未满足需求的人口统计学，临床，功能和生活质量相关性，并确定PWD之间未满足需求的独立预测指标及其非正式护理人员【结果】结果】结果】痴呆症患者的平均未满足需求比例为57％，而护理人员的平均需求为62％。未满足的需求明显与接受高等教育并具有未知类型的痴呆症有关。它还表明，在这一特定的队列中，接受高等教育和未知类型的痴呆症与较高的未满足需求的比例显着相关。
Faith Simushi [1];Jeremy A. Tanner [2];Stanley Zimba [3];Deanna Saylor [4];. Prevalence of Unmet Care Needs of community based People with Dementia and their caregivers in Lusaka[J]. Alzheimer's & Dementia, 2024,20(S4)